20 Answers

1. Johns Hopkins called Friday
2. Maybe it was a seizure
3. No she should not sleep with us
4. No we do not buy a bigger bed
5. No we do not buy her a bigger bed
6. Maybe it was a seizure
7. Hopefully funding will come through for her gymnastics class
8. I'm not sure if her seizures are getting worse
9. Her medical bills will be paid a little bit each month
10. Maybe it was a seizure
11. No reason to think she will lose the skills she has
12. I will call mom frequently and visit on Sunday
13. I'm not sure what other parents in our situation do
14. Maybe it was a seizure
15. Why not sign her up for camp, she'd love it
16. Hopefully, the counselors will be well trained and well equipped
17. Fear keeps me from asking certain questions, nothing wrong with that
18. Probably was a seizure
19. I don't know if she knows she is having a seizure
20. How's Kellyanne doing?  She's doing great!


Kellyanne will be going to Johns Hopkins on Valentine's Day for an appointment with a VERY good neurologist!  We will listen to what she has to say and hopefully get her on the schedule for the Video EMU (Epilepsy Monitoring Unit) to try to get a clearer picture of what is going on.

I spoke with her regular neurologist on Friday , who is also VERY good, and she had spoken with the neuro from Hopkins.  They discussed Kellyanne and agreed it would be good for her to be seen at Hopkins.  KA's regular neurologist is excellent at calming a parents fears. She answers questions directly but is also very clear about not letting fear take over and doesn't see the point in going down roads we haven't come to yet, and in her words, "more than likely won't come to".  She is not patronizing and doesn't say things to simply placate. She is patient,  listens to and answers all questions with great sincerity.  I am so thankful for Doctors like her!