I am a mom and a wife. We have 4 fantastic children. Our youngest child has special needs. A big name, Subcortical Band Heterotopia and Polymicrogyria which really boils down to our unique Kellyanne. This is an account of what goes on in our lives and more importantly, my head, as I navigate the dizzying world of special needs.
Sunday, May 10, 2015
Mother's Day 2015
It has been a year since I have posted.....a year!!!! It is not that I haven't sat down to write, it's just that every time I start, I stop. Not because I don't have anything to say, but because what I have to say is not full of joy and optimism and hope. It is draining and negative and, quite frankly, a downer. Why share that? Right? Well today is different. I will begin by saying that I am a mom to 4 of the most wonderful people I know - each amazing in their own right. I have so much to celebrate and be thankful for, and I am; truly, I am.
But.....in creeps that part that causes me to stop writing every time. This blog began as a way to share what life is like with Kellyanne, a child with special needs. Long ago, I had so much more energy (or so it seems) and the frustrations were outweighed by the joys. Today, at this very moment I bare my soul and say, I am tired, no exhausted....raising a toddler-teenager is one of the hardest things I have ever done and most days I feel as if I am failing miserably. I am not looking for platitudes or sympathy, it is the god's honest truth. I praise God every day for my husband, Michael. In God's infinite wisdom, He knew that I needed a life partner who could not only sustain me when I could not sustain myself, but sustain our family as well. He is strong when I am weak. He is patient when I am not. His optimism carries me through my most hopeless times. Thank you Michael!
Now the question is, will I hit POST,or will I once again delete, as I feel as if I have dumped a very ugly part of myself for all the world to see. I hate to play the "special needs" card, but sometimes you have to play the hand you are dealt and so I share this tiresome side of raising our very beautiful daughter, Kellyanne. I love her more than words can say, for those who know me, you know this is true. For my fellow special needs parents, I think you get what I am trying to say.
It is a beautiful day - celebrate being a mother. It's what I will try to do today, despite feeling like I am not very good at it some days.
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